Twenty-one-year-old French twins Vincent and Thomas Seris lead an ordinary life no different to others their age – as long as it takes place after sunset.
During the day, the men only venture out in attire resembling astronauts to protect themselves from the sun and its ultraviolet (UV) rays, or risk developing fatal types of cancer.
Colloquially referred to as the “Children of the Night” — or Les Enfants de la Lune in French — the Seris twins are among 70 to 80 people in France who suffer from Xeroderma Pigmentosum (XP), a rare genetic disorder.
The two men have been testing out a new protective mask which is transparent and ventilated and developed by several hospitals in the country.
There are up to 10,000 XP sufferers in the world, according to the French association “Les Enfants de la Lune.”
Surviving in circumstances comfortable in comparison to poorer folks in a poorer country, you still can’t count the Seris brothers as lucky – being able to live a long and fulfilling life. Still, they are treated by most ignorant strangers as if they were lepers passing through a market in the 18th Century.
RTFA. A worthwhile read. The Wider Image is one of the best things about Reuters.